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Beranda / Album / Orlando, fall 1991 29
Orlando was a show down with the American Health Care Association (nursing home lobby group) folks. Orlando police wanted to show us who was boss. They had snipers up on the roofs of buildings and barricades where ever AHCA was present. The first day we marched to the main hotel AHCA was staying at, and much of the leadership got caught up in an attempt to storm the lobby. Many, many ADAPT folks were arrested and sent to jail for several days. It fell to the rest of us to keep the protest up during the rest of the AHCA convention and our creative capacity was challenged, but not defeated. We held pickets and teach-ins and alternate conventions and kept the message going till we were reunited. Those on the inside had a rough time but held strong. The last day Wade had everyone take a free day to go to Disney World or hang by the hotel pool.
This was the last national action Wade took part in, as he drowned a few months later trying to save his son's life.
- ADAPT (723)
[This page continues the article from Image 681. Full text is available on 681 for easier reading.] - ADAPT (697)
The Orlando Sentinel, Saturday, September 7, 1991 Title: Disabled plan to demonstrate at convention The Orange Sheriffs Office is preparing for a showdown when nursing home operators and activists in wheelchairs show up next month. By Christopher Quinn of the Sentinel Staff The stage has been set for a wild showdown next month in Orlando among nursing home operators, deputy sheriffs and hundreds of wheelchair-bound protesters, some on respirators. The activists, whose tactics include chaining themselves to buildings to halt conventions, want fewer people kept in nursing homes and more money devoted to caring for the disabled at home. They are members of Denver-based American Disabled for Attendant Programs Today, or ADAPT. They plan to demonstrate at next month’s convention of the American Health Care Association at the Orange County‘ Convention and Civic Center. The association represents nursing home operators. If ADAPT members break the law during their protests — as they have in cities across the country — the Orange County Sheriff's Office plans to arrest them, possibly filling the county jail with people who require medical help. “Their aim is to be arrested," said Sgt. Jon Swanson, head of the Sheriffs Office intelligence unit. “Their whole tactic is confrontation.” ‘lt’s going to cost a lot of taxpayer money’ The Sheriff's Office will have to pay overtime to keep crowd and riot control squads on hand 24 hours a day during the four-day convention that begins Oct 6. “It's going to cost a lot of money, a lot of taxpayer money,“ Swanson said. An ADAPT newsletter about the planned protest says "Mickey Mouse and AHCA will never be the same after ADAPT travels to the tourist capital of the US." The newsletter boasts of how the group disrupted a speech by Health and Human Services Secretary Louis Sullivan earlier this year. Barbara Guthrie, an ADAPT organizer, said in an interview Friday that members are non-violent people willing to go to jail for their beliefs. “We'll push for arrest" she said. "There's thousands of people in nursing homes that don't need to be there.” Guthrie said ADAPT’s goal is for Medicaid to redirect 25 percent of its $23 billion nursing home budget to home care for the disabled. Guthrie-said she is confined to a wheelchair but is able to live at home because she gets a little help day getting dressed. Linda Keegan, a vice president for the nursing home association, said ADAPT does not seem interested in compromise. “What they're looking for is attention," Keegan said, adding that her group has met with ADAPT leaders twice this year to map out an agreement but that ADAPT continued to protest at meetings. “I really don’t believe what they’re looking for is to work anything out!" Keegan said the association's immediate concern is safety at the convention. She said she would not be surprised if ADAPT tried to block all the entrances at the mammoth building. They're pretty good," she said. Most of the 3,500 people attending the convention will stay at the Peabody Hotel across from the convention center on south International Drive. Swanson said ADAPT has reserved 80 rooms at the Clarion Plaza Hotel at the Convention Center just up the street. The group expects more than 300 members. In cities across the country ADAPT has blocked meetings, disrupted meetings and shut down offices as it sought to reach its goals. Last May in Washington, activists— more than 100 in wheelchairs — blocked entrances to the headquarters of the Health and Human Services Department to protest nursing homes. Some ADAPT members discarded their wheelchairs and crutches and tried to get past a police line securing the building. Some crawled under parked police cars and tried to squeeze past the legs of police officers in front of the entrances. Sheriff's crowd control officers will be trained in the next few weeks on how to arrest protesting quadriplegics and other disabled people without hurting them, Swanson said. Deputies might even find themselves under attack. Swanson said that in other cities, ADAPT members have formed wheelchair lines and rushed police barricades. Unless the ADAPT members were charged with felonies, which is unlikely, they would be processed through the county jail and released within a few hours. The jail, the state's most crowded, is under court order to release people accused of most non-violent crimes. Ed Hoyle, an assistant jail director, said if the protesters were arrested a second time, they probably would be held for a court appearance. The jail will have emergency medical workers on hand. For the protesters, the Orlando visit will not be all business. The ADAPT flier says, "There will be time at the end of the actions to play at Disney World and Epcot Center." - ADAPT (696)
Title: Disabled storm convention by the New York Times [handwritten: Denver Post 10/7/91] ORLANDO, Fla. — Seeking to redirect federal money toward in-home care and away from nursing homes, more than 300 advocates for the disabled yesterday stormed a hotel in Orlando, Fla., where representatives of the nursing home industry are holding their annual convention. The demonstrators, most of them in wheelchairs and many with severe disabilities, broke through police lines and blocked the entrance to the hotel for miore than an hour. The hotel is the site of the annual convention of the American Health Care Association, the trade organization for the nation’s mursing homes. Police arrested 50 protesters on charges of trespassing. The demonstration was part of a campaign by American Disabled for Attendant Programs Today, or ADAPT, a militant group based in Denver. Under the Medicaid program, the federal government annually pays nursing homes more than $20 billion. The group wants 25 per-cent of that money diverted to pay for personal attendants who would help severely disabled people take care of basic needs. Officials of the American Health Care Association say that while they support the notion of more long-term care in the home, they believe that ADAPT’s demands are unrealistic. - ADAPT (695)
The Orlando Sentinel The best newspaper in Florida Photo by John Raoux/Sentinel: At the corner of a driveway two helmeted sheriff's officers on motor cycles face off with a woman [Stephanie Thomas] in a manual wheelchair. Her mop of hair is blown around her head, and she is holding her push rims mid-push. Catpition reads: Protest continues - Stephanie Thomas, an activist for the disabled, squares off Tuesday with Orange County deputy sheriffs as she tries to take her wheelchair onto International Drive. Story, B-3. - ADAPT (694)
Title: ADAPT activists and nursing home operators Face to Face: Photo by Tom Olin: A woman in a power chair [Laura Hershey] has a huge sign taped to her front "Give America A Choice in Long Term Care." She has a tube going up to her mouth and she is staring at some people in suits who are looking at the ground in front of themselves. Behind her more people are walking around. Story is on ADAPT 671, 678 and 670 and text is entirely in 671 for easier reading. - ADAPT (693)
An ADAPT woman (Julie Nolan)0 crawls under a truck being used as part of a barrier to keep ADAPT out. Behind the truck is a security guard holding up a table to keep folks out, but he is looking back over his shoulder as Julie slips through. - ADAPT (692)
Title: Deputies prepare for protesters by Christopher Quinn of the Sentinel Staff [This articles continues on 687 but the entire text of the article is included here for easier reading.] PHOTO [AP file photo]: A guy in an ADAPT T-shirt sits on the sidewalk in front of a set of glass doors. His knees are bent but together and his feet are out to each side. His mouth is slightly open and he is wearing a hat. Behind him, through the glass a group of security men are standing holding the door handles and conferring. Caption: A disabled activist sits outside a casino in Sparks, Nev., in an '89 protest. Orange deputies are studying videos of the event. Title: Disabled activists plan to disrupt a convention of nursing home operators. In city after city since 1983, wheelchair-riding activists have climbed from their chairs, dragged themselves along the ground, halted traffic and chained themselves to buildings. On Sunday they’re coming to Orlando. They intend to be arrested, and the Orange County Sheriffs Office plans to accommodate them. Deputies have spent the past month gathering information on how to handle the protesters. "This isn't a win situation. No one wants to arrest paraplegics,” Sheriff Walt Gallagher said Thursday. “But I have to enforce the law.” The activists are members of ADAPT (Americans Disabled for Attendant Programs Today) and they plan to disrupt a convention of nursing home operators. The members believe the federal government spends too much money on nursing homes and too little helping the disabled live at home. The protest is aimed at the American Health Care Association, which is holding its annual meeting Sunday through Thursday at the Orange County Convention and Civic Center. “We want to make life miserable for them," said Mike Auberger, a quadriplegic who cofounded the group and now fights nursing homes. Auberger said the group will try not to inconvenience anyone but convention delegates. He said the convention is a prime target for his group because it is the only place so many nursing home operators gather. The protesters want 25 percent of the federal money spent on nursing homes shifted to home care for the disabled. Law enforcement officials who have dealt with the protesters in other cities say the group's main goal is favorable television coverage. “They'd like nothing better than to have the local media take a picture of three or four big cops taking a guy to the ground.” said Bob Cowman, a lieutenant for the Sparks, Nev., police. Members of the group descended on Sparks, a city near Reno, in 1989. They were stymied, however, when police methodically stopped the activists from disrupting a convention. Sparks officers gently arrested anyone who broke the law. When members threw themselves to the ground and crawled across streets, hoping to be picked up and hauled off to jail, police just watched, frustrating the protesters. The Sparks methods for dealing with the group’s tactics have become the standard other agencies emulate. Orange deputies have spent hours watching videotapes of the Sparks protest. The tapes show legless protesters throwing themselves out of their wheelchairs and walking on their hands across streets. “Members have been known to throw their colostomy bags at the Police,” says a Sparks report on the protest. Auberger said that’s just not true. The Sparks convention and protest were smaller than what is expected in Orange County. The Sparks convention involved 500 delegates and around 100 protesters. The convention here will involve more than 3,000 delegates and more than 300 protesters. “We’re as prepared as we’re going to be,” said Sgt. Jon Swanson, head of sheriffs intelligence. Today a wheelchair-bound consultant will teach deputies how to arrest the disabled without hurting them or damaging the wheelchairs. Starting Sunday a riot squad will be at the convention center 24 hours a day. If the disabled protesters attempt to block traffic or center entrances, 120 deputies will be on hand to make arrests. The county will have to pay as much as $200,000 in overtime. “One hundred and twenty cops isn't going to do it," Auberger said. “That's not enough per person." The cost is in addition to whatever Orange jail chief Tom Allison spends housing arrested activists and tending to their medical needs. Allison said he’s ready to handle hundreds of prisoners in wheelchairs. Swanson and Allison said they hope any activists who get arrested stay in jail a few days. Bonds will be set at $500 for the misdemeanor charges the protesters usually face. Because the activists are from out of state, bail bond agents will be unlikely to help, said John Von Achen, president of the Tri-County Bonding Association. When members have been arrested and freed without bond in other cities, they have immediately returned to the protests to be arrested again. “We don't want to get into a scenario where we arrest them, release them, arrest them, release them, arrest them, release them,” Allison said. Auberger said there is another way: “Not to arrest any of us.” The headquarters hotel for the convention is the Peabody Orlando, across from the convention center, but some delegates are staying up the street at the Clarion Plaza Hotel. The protesters have reserved 90 rooms at the Clarion. The convention schedule calls for delegates to be in seminars at the convention center or in training at Walt Disney World on Sunday and Monday. Auberger said his group might stage a protest at Disney. On Tuesday morning, however, Red Cross president Elizabeth Dole will address the convention. Television weatherman Willard Scott will speak Wednesday. Swanson said the protesters might save their big protest for the speeches. Cowman, the Sparks lieutenant, said Orange deputies just need to expect the worst. “Some of them are basically professional protesters,” he said of the group’s members. But they are severely disabled, and Sparks officers repeatedly offered to help the activists. “You can’t help but feel sorry for these people," Cowman said. - ADAPT (691)
Title: 73 arrests in wheelchair melee by Darryl E. Owens Orlando Sentinel Monday 10/7 [This article is continued on ADAPT 688 but the entire text is included here for easier reading.] PHOTO by Tom Fitz/Sentinel: A woman (Anita Cameron) is being shoved over by a security guard or police officer, only his arm is visible. Her face shows pain and fear. She is falling into the lap of a woman in a wheelchair (Jennifer McPhail) who looks down at Anita and is being held forward by a woman and a man protester who are looking at the police. Behind Jennifer is another wheelchair user and behind them is another ADAPTer in a wheelchair and a man standing (Chicken-man Carl ______). Over the shoulders of the other two protesters more ADAPT protesters, in wheelchairs and standing, are up against other barriers but looking at what is happening to Anita. In the background the ADAPT bubble van is visible. Caption: [Unreadable][Anita]Cameron of Denver is shoved in confrontation with Peabody security force members Title: Disabled place hotel under siege by Darryl E Owens of the Sentinel Staff The battle lines were drawn early Sunday afternoon. For Wade Blank and the 210 or so members of ADAPT, or American Disabled for Attendant Programs Today, the plan was simple. “We're going to block the entrance to the hotel because those people block our lives," he said of the American Health Care Association, which represents nursing home operators and has attracted 3,500 people to a convention this week at the Peabody Hotel. On the other side, hotel security and about 130 Orange County deputies and Florida Highway Patrol troopers were standing by to stop any protesters who blocked the doors with their bodies or their wheelchairs. “The main goal is to assist and help these people in a professional and sensitive manner," said sheriffs spokesman Cpl. Doug Sarubbi. “But when they break the law. we’ve got to enforce it." When the battle ended, one person had been hurt. one had suffered a heart attack and at least 73 had been arrested as ADAPT launched its four-day protest demanding fewer people be kept in nursing homes and more money be devoted to caring for the disabled at home. It was a battle authorities had mapped out extensively, making sure officials and facilities could accommodate the 'protesters' disabilities, said Sarubbi and Ed Royal, the Orange County Jail's assistant corrections director of programming. The costs of the special provisions had not been added up late Sunday, Sarubbi said. “This wasn't supposed to be the big day" of the protest, Sarubbi said. “We expect it every day and are prepared for whatever happens." More arrests were expected late Sunday, Sanibbi said. Each protester was charged with trespassing, taken to the Orange County Jail and held on $1,000 bail. A woman apparently was cut on the head when a table or bicycle lock fell on her while she tried to break through a barricade at the north entrance of the hotel. Pat Hasley, a top Peabody security specialist, suffered a heart attack outside the hotel and was taken to SandLake Hospital. His condition was unknown late Sunday. In demonstrations across the country, ADAPT has blocked meetings, disrupted speeches and shut down offices. “We chose to shut down the able-bodied system that suppresses us," ADAPT co-founder Blank said. "If they choose to arrest us, so be it." Denver-based ADAPT wants Medicaid to redirect 25 percent of its $23 billion nursing home budget to home care for the disabled. The group also wants 45 minutes on the convention agenda to make its position known. “We‘re not trying to change the world," said Toni Funderburk, who calls herself a nursing home survivor. “We're just trying to live in it." Linda Keegan, a vice president for the nursing home association, said the group could better spend its time at the bargaining table rather than barricading buildings. “I think it would make a bigger difference if they sit down with us and come to a compromise. "It's not our money to give," she said. “The real issue is an issue of choice. There needs to be choice on both sides. The only approach that makes sense is to sit down and form a compromise that makes sense for all." Sunday's showdown began at 12:35 p.m. as protesters filed out of the Clarion Plaza Hotel, across the street from the Peabody, with a phone number to a group lawyer scrawled on their arms, shouting "Hey! Hey! Ho! Ho! Nursing homes have got to go!" Others carried signs with such slogans as "End apartheid Destroy nursing homes" as others waved a modified U.S. flag with the stars forming the universal handicapped symbol. As the first protesters reached the Peabody parking lot, deputies confronted them. The protesters climbed out of their wheelchairs, crawled on the ground and tried to scoot past and through the legs of deputies in a race for the hotel doors. “Get to that damn door," barked Bob Kafka, a Texas ADAPT organizer. “Go! Go! Go!" Security scrambled to block the protesters, but ADAPT members managed to create a logjam at the entrance with their bodies or wheelchairs. “It's inconvenient," Peabody general manager Michael French said of the protest. “We respect their right to protest, but they must respect our right to operate a business." After the protesters refused security workers' request to leave, several school buses arrived, specially equipped for the disabled. Authorities brought in a moving van for non-disabled protesters. “We tried civil means and they just give us a cookie, pat us on the back and say, ‘Go away,'" Funderburk said. Deputies carried crawling protesters and ushered wheelchair users into the vehicles. The display drew looks of disbelief from some hotel guests and empathy from others. “It's awful," said Elma Oeters, visiting from Europe. Jacqueline Krygsman of Holland called the situation ridiculous, saying her country has a national health care policy. “They should have things at home." Police shuttled prisoners across the street to a makeshift booking office at the Orange County Convention and Civic Center before taking them to jail. Royal said open bay cells normally reserved for juveniles, psychotic inmates and those with other special needs were used for the protesters in wheelchairs. Guards were on duty in the bays. The open bays, which normally hold about 60 people, contained between six and 10 handicapped people, depending on their needs. Four nurses were added to the normal staff of five, he said. "The corrections staff underwent special training to understand the needs of handicapped individuals," Royal said. Other special provisions made by the jail included obtaining hand-held commodes and arrangements for the care of any guide dogs accompanying blind protesters. Those arrested will have to go through the normal process to be released. “Those who are able to bond will be allowed to bond," Royal said. “Those who are not able to bond will have to go to first appearance before a judge in the morning." Most protesters, after being informed of the $1,000 bond, said they could not afford to pay and would remain in jail, Blank said. "I guess Orlando wants to prove a point," he said. “We didn't travel 1,900 miles to haul it in after one day. It's not like it‘s anything new. Nursing homes or jail. We know what being incarcerated is all about." Mary Brooks of the Sentinel staff contributed to this report. - ADAPT (690)
The Orlando Sentinel Local & state B TUESDAY, October 8, 1991 [This clipping contains two articles. Artilce 1, titled Q & A is a boxed insert. It is continued on a page that are not currently available. Article 2 continues in ADAPT 686 but the entire text of the article is included here for easier reading.] Main Title: Disabled protesters refuse to attend talks Article 1 - Title: Q&A no author given; Lauren Ritchie is interviewer. Mike Auberger discusses why the group of disabled people that he helped organize is protesting the meeting of the American Health Care Association. Auberger was interviewed Monday from his cell at the Orange County Jail by Lauren Ritchie. Question: Why is ADAPT targeting nursing home operators? Answer: The nursing home industry is a $50 billion a year organization. lf you happen to be 30 years old and disabled and live, say, in Ocala —— and there are no personal assistance programs — than you're forced into a nursing home simply because you have physical needs you can't take care of yourself. Q: Why, from your perspective, is that bad? A: If you've ever talked to anybody who's been in a nursing home, the only difference between there and jail is the color of the uniforms. The jail uses guns to keep you there; the nursing home uses pills. You have no choice about when you get up, what you wear, what you eat or don't eat and when you go to bed. When we talk about nursing homes, we talk in terms of incarceration. You never escape from a nursing home. lf you are older and disabled, you could be forced to sell your home, forced to give up everything. The issue is quality of life. Most people can be taken care of in their own homes. Q: Why does ADAPT focus on nursing homes rather than the federal goverment? A: Under the Medicaid program, each state is required to participate in nursing home funding [for the disabled]. Every time a state does a budget it has to identify a certain amount of dollars for nursing homes. If you ... please see Q & A, B-4 Article 2 Photo by Red Huber/Sentinel: The picture is divided almost down the middle by a line of police barricades. On the left side a row of uniformed police officers stand leaning forward, arms stiff, holding the barricades in place. On the right a line of ADAPT protesters (San Anontio Fuentes closest to the camera) face off with the police. Behind them several standing people look on. Caption: A steel barricade and a line of Orange County deputy sheriffs prevent protesters from reaching the doors at the convention center. Title: Deputies expect the protests will grow worse when famous speakers address the convention. By Mary Brooks, of the Sentinel Staff Disabled activists demonstrating at a convention of nursing home operators rejected an offer to meet with industry leaders Monday, calling it a ploy to end their protest. But a spokeswoman for the American Health Care Association, which is playing host to 3,500 people at its annual conference in Orlando, said members of ADAPT -- Americans Disabled for Attendant Programs - seemed more interested in drawing television cameras than in drawing up an agreement at a discussion table. Activists say they plan to continue trying to block entrances to the Orange County Convention and Civic Center until the conference ends Thursday. Deputies expect the worst will come during the visits of the convention's noted speakers. This morning, Red Cross president Elizabeth Dole will address the convention. Television weatherman Willard Scott is scheduled to speak Wednesday. In their second day of demonstrations Monday; about 120 ADAPT members clustered near the three main entrances to the convention center on International Drive. They were barred from approaching the center doors by portable steel fences and 130 Orange County deputy sheriffs. "In the past they've blocked entrances with chains. We want to prevent that," said sheriff's spokesman Cpl. Doug Sarubbi. “They have a right to be here, but the conference attendees have a right to be here. too." Two protesters were arrested late Monday after they refused to stop using a loudspeaker. The protesters, many of them in wheelchairs and a few with guide dogs, sang, chanted and shouted at convention-goers. Tension mounted for several minutes when some of the disabled rammed their wheelchairs into the barricades. There were no injuries. Organizers said the 74 protesters arrested in clashes with deputies on Sunday at the Peabody Hotel on International Drive would not post bond and would remain in the Orange County Jail. Pat Hasley, a hotel security guard who suffered a heart attack during Sunday’s demonstration, was in stable condition Monday at Sand Lake Hospital. Denver-based ADAPT wants Medicaid to funnel 25 percent of the $23 billion nursing home budget to home care for the disabled. The group also wants the chance to address convention participants. “Right now, if you're disabled and need medical services and can’t afford it, they’re going to lock you up" in a nursing home, said Stephanie Thomas, an ADAPT organizer. Demonstrators claimed that 1.6 million disabled people in nursing homes really shouldn’t be there. “We don’t think the extreme needs of a very small percentage should dictate where all the money goes,” said Molly Blank, an organizer from Denver. During about four hours of protest Monday, some convention-goers stood outside the center to watch. Ralph Frasca of Cedar Falls, Iowa, and Mary Scheider of Joliet, Ill., were among a few who ventured over to talk to the demonstrators. “They have a legitimate grievance,” Scheider said. “The main issue is at-home care, diverting funding from institutional care to home care. The funding system now is skewed toward institutional care." Frasca, a journalism professor at the University of Northern lowa, said many convention participants were tumed off by ADAPT’s approach. “The discussion thus far has not centered around issues but rather the sensationalism of the event. I think a non confrontational, peaceful dialogue should be taking place." Linda Keegan, a spokeswoman for the American Health Care Association, said the demonstration did not disturb the convention activities. She said ADAPT had not contacted the association about a meeting or about getting time on the convention agenda before Sunday. She said the health care association’s executive board has met with the group twice this year, each meeting ending in chaos. “We made a commitment to meet. They made a commitment to protest.” The association proposed on Monday to meet with ADAPT on Thursday under the condition that the activists stop protesting. “We don't think that is a good faith offer," said Thomas. The Sheriffs Office and the jail had made extensive preparations for handling the disabled protesters, including special training and added staff. Sarubbi said the Sheriff's Office would not know what the cost would be until the demonstrations are over. Ed Royal, an Orange County Jail administrator, said volunteers from jail ministries were helping to defray some of the costs of handling the disabled inmates. The jail also had to get foam mattresses, diapers, chargers for wheelchair batteries, and other special equipment. The problems of caring for the protesters are many, Royal said. Staff and volunteers had to document and administer medication, and to help inmates relieve, bathe and feed themselves. Jail officials were able to make trades for some supplies with hospitals, but other materials had to be bought. Monday morning, 37 jailed activists began refusing food and liquids and another 10 would not eat but were drinking. Medical staff were monitoring the hunger strikers and were prepared to take them to hospitals if needed, said Royal. On its lawyers’ advice, the corrections department has been videotaping the disabled inmates since their arrival. "They have a history of saying they were mistreated while in custody, so we're taking no chances," said Royal. - ADAPT (689)
NOVEMBER-DECEMBER 1991 DISCLOSURE/5 NEIGHBORHOOD BY NEIGHBORHOOD! [Headline] ADAPT Hits Nursing "Home" Lobby in Orlando ORLANDO, FL.--When Health and Human Services Secretary Luis Sullivan refuses to meet with you, what do you do? If you are an ADAPT (American Disabled for Attendant Programs Today) activist you take your grievance from the public to the private sector. From Sunday October 6th. to Thursday October 10th. 450 ADAPT activists from 25 states converged on the Annual Convention of the American Health Care Association (AHCA), the nation's largest nursing home lobby. The lack of a national policy to fund attendant home care services for people with disabilities is ADAPT's issue. ADAPT was targeting the AHCA directly with their proposal to redirect a minimum 25% of Medicaid's $23 billion budget to establish a national program of community-based attendant home care. ADAPT targeted the AHCA because of HHS Secretary Louis Sullivan's refusal to meet with ADAPT representatives to work out a comprehensive attendant home care program ADAPT's grievance to the AHCA is that its lobbying on behalf of the nursing "home" industry serves to keep disabled citizens that would be able to live in a home environment trapped in an institutional environment. A disproportionally larger share of the Medicaid budget goes to nursing homes instead of community-based programs such as attendant home care. "The AHCA represents 95% of the 10,000 nursing homes in the U.S. Together, these institutions collect 6C% of their income from Medicaid. They end up making a profit from people's disabilities," explains Mike Auberger, with Denver ADAPT. Until Louis "Dr. NO" (nicknamed because of his continuing refusal to meet with ADAPT) Sullivan makes time to meet with disabled citizens, ADAPT will continue to battle the nursing home industry on their own. Auberger continues, "These people are not cattle that you can charge so much for. We'd like to get rid of the profiteering and instead provide a creative humane system in people's homes." ADAPT activists were attempting to block the entrances to Orlando's Peabody Hotel & Convention Center with their wheelchairs when the Orlando Police Department intervened. The OPD had busses equipped with lifts brought in to arrest any demonstrator that attempted to block the en-trances to the convention center. And arrested they were. On Sunday 73 ADAPT activists were arrested and imprisoned in accessible cells. Most were arrested for attempting to block the entrances to the convention center, however many were [boxed text] "The money should follow the people. When it comes to nursing homes, the people want out Attendant home care is the solution," Mark Jackson, Atlanta ADAPT. [image] [image caption] In lieu of HHS Secretary Luis "Dr. NO" Sullivan, ADAPT activists march to the Orlando convention center to challenge the nursing "home" industry lobby. (Photo by Tom Olin) [text resumes] also arrested for blocking the arrival and departure of the lift-equipped buses. The activists, many of which are low-income, refused to post the $1,000 bail and were finally released on Friday. By blocking the door and refusing to pay the bail, the activists were illustrating to the convention-goers the plight of residents trapped in the almost prison-like conditions in nursing homes. The demonstrations and the subsequent arrests brought the issue of attendant home care to the forefront of the nursing home industry and the general public. Mark Jackson, with Atlanta ADAPT, described the media situation. "Every time we do an action in a new city, we get more people involved. This was the first time ADAPT hit Florida. Everyone in the general public can relate to nursing homes, they know someone, family or friend, that has been put in a nursing home. These people can relate to the fact that people don't want to be institutionalized." Auberger agrees, "There are 2 million people in Orlando that now under-stand the issue. This is a population that has an opinion, and that makes a difference." The attendant home care issue is actually very simple according to ADAPT. A disproportionate amount of the budget for disabled citizen's services goes to funding the nursing home industry instead of attendant health care. For every person you can [text cuts off] to in a nursing "home", you can provide attendant home care for two in the community. Attendant home care is a cost effective way of providing disabled citizens with a stable home environment, one with dignity, instead of forcing them them to languish in a nursing "home". According to ADAPT, there are 1.6 million disabled citizens that remain "imprisoned" in the nursing "home" system that could be living fuller lives in their own homes. The fundamental debate centers on the quality of life for disabled people. Quality of life is higher for those who remain at home, with an attendant assisting them with household maintenance. Nursing "homes" resemble prisons, in numerous ways, most importantly in that residents do not have control over their own lives, in terms of eating, sleeping, recreation, etc. It is this lack of control that damages the self-esteem, dignity, and reduces the quality of life for the disabled. Thousands of people with disabilities, old and young, are locked away in institutions and nursing homes or trapped at home because no effective community options exist. For thousands of other people with disabilities, the fear of being placed in a nursing home or some other institution is an everyday reality. It doesn't matter the age or disability, race or sex, whether employed or not, institutions for many are the only option. "The AHCA says that we don't want to negotiate, that we don't want to meet. Well, ADAPT is not going to have a meeting for the sake of having a meeting. We sent them our '25%' proposal, and we gave them a resolution to vote on at their convention. They refused to discuss either one. Until they are willing to sit down at the table and hold a serious discussion on our proposals or their own alternative, we're going to keep the heat on," maintains Jackson. ADAPT maintains that the nursing "home" industry has too much influence over how services are delivered, Disabled people are treated like commodities by a corporate nursing "home industry that is more concerned with profit than need. There is an institutional bias in most privately and publicly funded programs. The majority of funding is being spent for nursing homes and other institutions because of the influence of the American Health Care Association and other lobbying groups. "When you take a look at the budget to provide long-term services to the disabled community...most of the money goes to institutions. Why is that? The nursing 'home' lobby is very powerful, and that pressure keeps the money flowing into the nursing 'home' industry. People are forced to follow. the money, and we want this to change. The money should follow the people, and the people want out," concludes Auberger. ADAPT pledges to continue to demonstrate for attendant home care until all of the disabled citizens that can be removed from the oppressive nursing "home" industry are returned to their homes and provided with attendant home care. ADAPT will also continue to press HHS Secretary Sullivan for a meeting to present their "25%" attendant home care proposal. - ADAPT (688)
[This clipping has 2 articles in it. Article 2 starts in the left top column. Article 1 continued from ADAPT 691 and the text of that article in included with ADAPT 691 for easier reading.] ARTICLE 2 Title: Health care activism on the rise Title: Special-interest patient `groups` are multiplying while the amount of money available is decreasing. By Delthia Ricks, of the Sentinel staff The dilemmas of increasing numbers of special-interest patient `groups` and a decreasing supply of health care dollars are spawning a growing militant movement in medical care. The opening of the American Health Care Association’s annual meeting in Orlando has drawn a spotlight to the activism increasingly associated with national health care issues. From AIDS to breast cancer to rare diseases, patients are organizing and resorting to demonstrations and protests — often violent ones — to express their views. Members of ADAPT — American Disabled for Attendant Programs Today — have formed human barricades, chained themselves by the neck to buildings, tacked up posters against the Health and Human Services secretary, and hurled themselves from wheelchairs. The group stages many of these demonstrations at AHCA's meetings, which ADAPT routinely follows around the country. The non-profit AHCA, headquartered in Washington, is a key lobbying organization for nursing homes and other long-term health care facilities, representing about 10,000 of them nationwide. At issue for both `groups` is the way the federal government spends it health care money. Nursing home executives would like to see long-term health care policies reformed. ADAPT members want a share of the federal dollars going to nursing homes now. “They're not looking at the real issue, which is long-term health care financing," Linda Keegan, an AHCA vice president said of ADAPT. “One of the biggest issues we face today is long-term health care financing reform." Among the issues her organization will address throughout the week will be ways in which the government can devise a long-term health care policy and meet the needs of elderly and disabled Americans, she said. But ADAPT's members see billions of dollars currently flowing into long-term health care facilities and would like to have 25 percent. This way, they say, the disabled would be kept out of special care homes and living independently. ADAPT sees using money allocated through the state and federally administered Medicaid program for in-home health care aides. The aides would be paid to cook, drive and do chores for people who are blind, have lost the use of their limbs, or suffer other disabilities. “The issue is the right to independent living," said Ida Unsain, director of home health care at ADAPT‘s Denver headquarters. “People with disabilities are being admitted into care homes. Some of these individuals don't belong there and could be taken care of through home health. The current structure of reimbursement is slated toward care home industries, and what ADAPT is stating is that a percentage of that budget be allocated to states for independent care for the disabled." In 1989, the most recent year federal figures are available, the federal govemment paid $23 billion in nursing home costs through the Medicaid system. Another $23 billion was paid by a combination of family assets, Veterans Administration benefits and private insurance to meet additional nuising home costs. In Florida, nearly $850 million is paid to nursing homes from a Medicaid budget of about $4 billion, By 2020, federal officials estimate Washington's contribution to nursing homes will be $100 billion if the nation maintains the current Medicaid payment system. Lack of a long-term health care policy that will carry the nation into the 21st century has been as big a problem for established `groups`, such the AHCA, as it has been for patients. President Bush repeatedly has said that a long-term health care policy is an administration goal, but a plan that meets the needs of both the elderly and disabled has yet to be approved. ADAPT's Unsain said her group does not want to wait for the administration to produce a new long-term health care policy. Money may not be allocated for them in a new health-care pie, she said, and that's why ADAPT members are seeking money now. “The violence is part of the outcome," Unsain said. “lt's what happens when we try to express our views. It's not what we're all about." She attributes passage of last year's federal Disability Act mandating increased access for the disabled on public transportation systems, and in buildings, to ADAPT's militancy throughout the 1980s. Keegan of the nursing home association said ADAPT members, who stage protests every time the AHCA meets, are not concerned about changing the way the government finances long-term care. “I think the reason they follow us is because they are looking for attention, and the method they've chosen to got mention is confrontation and disruption.“ she said. - ADAPT (687)
Title: Convention to attract protesters (from ADAPT B-1) This is a continuation of the article that starts in ADAPT 692. For easier reading the text of the entire article is included there. - ADAPT (686)
[This article is a continuation of the article 2 in ADAPT 690 and the entire text has been included there for easier reading.] Photo by Red Huber/Sentinel: A set of three women in wheelchairs [front to back: Kristen Castor, Barb Gutherie, Lisa Harris] sit in an aisle beside rows of empty white plastic chairs. Behind all the chairs more people in wheelchairs sit, and on the far side of the room and at the very back of the room clusters of people stand. All look tired and annoyed and face toward the front of the room. Caption: ADAPT demonstrators appear in court on Monday. They refused to pay bail. - ADAPT (685)
The Appalachian Reader Regional News [image] [image caption] Tennessee ADAPT organizer and activist Diane Coleman helps block the entrance to an Orlando hotel where nursing home representatives are meeting. [Headline] Tennessee activists travel to Orlando to protest institutionalizing of disabled Members of ADAPT of Tennessee (Americans Disabled for Attendant Programs Today), along with ADAPT activists from around the country, descended on Orlando, Florida, during the second week in October to protest the warehousing of many of their fellow disabled citizens in nursing homes. The protests, at the hotel where the American Health Care Association was meeting, were held to call attention to the fact that, while millions of dollars are spent each year to institutionalize disabled people, almost nothing is spent to provide attendant services that could enable those people to stay at home in the community, with their families and friends. More than 200 members of ADAPT blocked entrances to the hotel on several different occasions during the week, and many were arrested and jailed. Inside, representatives of most of the nation's nursing homes met to learn how to run them better. Outside, activists insisted that if even one quarter of the money spent by Medicaid on nursing home care were re-channelled into attendant services, thousands of disabled people could be released from the homes' restrictive and often humiliating care. For more information on the actions, or about ADAPT of Tennessee, contact Diane Olin at 1478 Stayton Road, Cumberland Furnace, Tennessee 37051 or call (615) 789-5236. - ADAPT (684)
The Orlando Sentinel, Thursday October 10, 1991 the best newspaper in Florida PHOTO by Phelan M Ebenhack/Sentinel: Three people (left to right: Frank Lozano, Bunnie Andrews? and Sue Davis) are standing in front of a wall. On the wall a cross with "Nursing Homes Kill" written on it is partially visable, as is the ADAPT flag (an American Flag with the stars arranged to form the wheelchair/access logo). The three are lifting up an old fashioned folding E & J manual wheelchair to hang it on the cross. Frank, who is blind and wears a headband and T-shirt with ADAPT on them, has his hand raised. Caption reads: Frank Lozano and Bunnie Andrews, both of Colorado Springs, and Sue Davis of Louisville, Ky., chain a wheelchair to a cross marked ‘Nursing Homes Kill.‘ Title: Disabled saw their message on many faces by Sharon McBreen of the Sentinel Staff Protesters say they made their message clear this week after 250 activists in wheelchairs converged on Orlando. “It’s almost as though they never felt it before we've gotten in their faces,” Diane Coleman said. “You can feel the impact of that. You can see it in their eyes." The members of ADAPT — Americans Disabled for Attendant Programs Today — carried a message to the American Health Care Association, which attracted 3,500 delegates to a convention this week at the Peabody Hotel. ADAPT membels want an alternative to nursing home care. And they want to live at home. During the convention, which ends today, ADAPT members tried to block the Peabody’s doors with their bodies and wheelchairs. Police arrested 75 protesters on trespassing charges. The group wants a fourth of the $23 billion Medicaid spends on nursing homes and other institutions transferred to at-home care. “We need to reach the `rank`-and-file members of AHCA and the American public," Coleman of Tennessee said at a Wednesday news conference. At least one convention delegate said he wanted to hear more, she said. Nursing home association representatives have asked ADAPT members to meet with them. But what the activists really want is a national policy giving the disabled a choice, said Mark Johnson of Atlanta. Johnson said the nursing home industry doesn't want to allow the disabled to live at home, because it would lose out on the Medicaid money they receive. Wednesday night's news conference had to be moved from the front of the Orange County Convention and Civic Center to a room in the Clarion Plaza Hotel because police threatened to arrest them, one of the organizers said. Orange County sheriff's spokesman Doug Sarubbi denied that. He said an agreement reached with the judge who released the protesters from jail prohibited them from trespassing on Peabody Hotel property. Sarubbi said the Sheriff's Office was tabulating the time and money — estimated at least $100,000 —- it spent on the protest.